Check out the AutMont Calendar to see all of the activities for this week, as well as those coming up!
Wednesday, May 22:
Social Behavior Mapping
Up for Discussion on AutMont:
Wandering ... is it a problem or concern of yours? Stay tuned or more information on how to protect your child and family.
*****
Do you know of another event? Leave details in the comments!
Tuesday, May 21, 2013
Monday, May 13, 2013
Event Summary for the Week of May 13, 2013
Check out the AutMont Calendar to see all of the activities for this week, as well as those coming up!
Monday, May 13:
Tuesday, May 14:
Self Advocacy: An Adolescent Transition Lecture (outside Mont. Co)
Occupational Therapy for Children on the Autism Spectrum
Wednesday, May 15:
Thursday, May 16:
Friday, May 17:
Saturday, May 18:
Germantown 5-Miler
Sunday, May 19:
Up for Discussion on AutMont:
*****
Do you know of another event? Leave details in the comments!
Monday, May 13:
Tuesday, May 14:
Self Advocacy: An Adolescent Transition Lecture (outside Mont. Co)
Occupational Therapy for Children on the Autism Spectrum
Wednesday, May 15:
Thursday, May 16:
Friday, May 17:
Saturday, May 18:
Germantown 5-Miler
Sunday, May 19:
Up for Discussion on AutMont:
*****
Do you know of another event? Leave details in the comments!
Sunday, May 5, 2013
Event Summary Week of May 6, 2013
Check out the AutMont Calendar to see all of the activities for this week, as well as those coming up!
Monday, May 6:
Bounce U Sensory Rebound Bounce
Tuesday, May 7:
Understanding SSI/Medicaid &SSDI/Medicare
Wednesday, May 8:
Social Thinking Conference
Siblings: A unique perspective
MC Trans Meeting w/Hans Riemer
Our Dash in Time: Reflections on Dreams and Being: Jeni Stepanek
Thursday, May 9:
Saturday, May 11:
Saturday Night Alive
Sunday, May 12:
James and The Giant Peach - Sensory Friendly Performance at Imagination Stage
*****
Do you know of another event? Leave details in the comments!
Monday, May 6:
Bounce U Sensory Rebound Bounce
Tuesday, May 7:
Understanding SSI/Medicaid &SSDI/Medicare
Wednesday, May 8:
Social Thinking Conference
Siblings: A unique perspective
MC Trans Meeting w/Hans Riemer
Our Dash in Time: Reflections on Dreams and Being: Jeni Stepanek
Thursday, May 9:
Saturday, May 11:
Saturday Night Alive
Sunday, May 12:
James and The Giant Peach - Sensory Friendly Performance at Imagination Stage
*****
Do you know of another event? Leave details in the comments!
Labels:
event summary
Tuesday, April 30, 2013
Autism Awareness Month
It is the last day of April, the month that marks Autism Awareness Month. I hope that everything we learned and did this month continues every day and month.
Autism can be scary thing for a parent to hear. My autism is different from your autism and her autism. It is a neurogenetic condition that affects language development, speech, social interpretation and social interaction, limited play/repetitive behaviors, the processing of sensory information (auditory, tactile, proprioceptive) affecting touch, being touched, clothing on the body, sounds, light, and eating certain foods, motor skills both fine and gross, immunity/health and, gastrointestinal issue are often present along with allergies and rashes. This is my definition, based on my observations of my son and others I know. Each person living with Autism is affected in some of these areas in differing amounts, thus, no two autistic people are the same.
Another huge impact of autism is that on the family of the affected. Marriages suffer, sibling relationships are impacted as well as other family relationships and friendships.
Autism changes lives.
My hope is that we can be open with each other, sharing our experiences in a nonthreatening way, learn from each other, help each other. I hope even more that we can teach others in our world, through our friends, neighbors, and families what this is like, what it means to have autism and how we can all live in a non-autistic world that is filled with autistic people. We all need to understand each other better.
May the lessons and intentions of Autism Awareness Month be with us every month.
Autism can be scary thing for a parent to hear. My autism is different from your autism and her autism. It is a neurogenetic condition that affects language development, speech, social interpretation and social interaction, limited play/repetitive behaviors, the processing of sensory information (auditory, tactile, proprioceptive) affecting touch, being touched, clothing on the body, sounds, light, and eating certain foods, motor skills both fine and gross, immunity/health and, gastrointestinal issue are often present along with allergies and rashes. This is my definition, based on my observations of my son and others I know. Each person living with Autism is affected in some of these areas in differing amounts, thus, no two autistic people are the same.
Another huge impact of autism is that on the family of the affected. Marriages suffer, sibling relationships are impacted as well as other family relationships and friendships.
Autism changes lives.
My hope is that we can be open with each other, sharing our experiences in a nonthreatening way, learn from each other, help each other. I hope even more that we can teach others in our world, through our friends, neighbors, and families what this is like, what it means to have autism and how we can all live in a non-autistic world that is filled with autistic people. We all need to understand each other better.
May the lessons and intentions of Autism Awareness Month be with us every month.
| Our wreath for Autism Awareness Month, we made it together. |
Event Summary for the week of April 29, 2013
Check out the AutMont Calendar to see all of the activities for this week, as well as those coming up!
Monday, April 29:
Tuesday, April 30
Navigating the Financial World of the Special Needs Family
Thursday, May 2:
Futures & Estate Planning for Families of Children with Developmental Disabilities
The Germantown 5 miler and the Sports Plus 1K will be held on May 18th and is conducted by the Montgomery County Road Runners Club. The race, known for its rolling course and starts, finishes across the street from the new Shops at Seneca Meadows, in Germantown. The Sports Plus 1K allows children of all ages to enjoy the opportunity to be exposed to racing by entering the 1K Fun Run. Registration is now open for both the 2013 Germantown 5 Miler and Sport Plus 1K. Please go to www.germantown5miler.com , to access the registration. For those of you who are adults, you can sign up on-line between now and May 6, and pay $25.00. If you sign up May 7- May 16, you pay $30.00. A running shirt for each adult is included. If your child is interested in running the 1K (or 5K), your on-line fee is $10.00. That includes a t-shirt. If you wish to register at Packet Pickup, you will pay $15.00, and on race day, $20.00. Sign up soon! It is a fun event for the whole family and supports those on the autism spectrum.
*****
Do you know of another event? Leave details in the comments!
Monday, April 29:
Navigating the Financial World of the Special Needs Family
Thursday, May 2:
Futures & Estate Planning for Families of Children with Developmental Disabilities
The Germantown 5 miler and the Sports Plus 1K will be held on May 18th and is conducted by the Montgomery County Road Runners Club. The race, known for its rolling course and starts, finishes across the street from the new Shops at Seneca Meadows, in Germantown. The Sports Plus 1K allows children of all ages to enjoy the opportunity to be exposed to racing by entering the 1K Fun Run. Registration is now open for both the 2013 Germantown 5 Miler and Sport Plus 1K. Please go to www.germantown5miler.com , to access the registration. For those of you who are adults, you can sign up on-line between now and May 6, and pay $25.00. If you sign up May 7- May 16, you pay $30.00. A running shirt for each adult is included. If your child is interested in running the 1K (or 5K), your on-line fee is $10.00. That includes a t-shirt. If you wish to register at Packet Pickup, you will pay $15.00, and on race day, $20.00. Sign up soon! It is a fun event for the whole family and supports those on the autism spectrum.
*****
Do you know of another event? Leave details in the comments!
Labels:
event summary
Tuesday, April 23, 2013
Struggles
Earlier today I had to pick up Noah from preschool about half an hour early to go to therapy, specifically, a social skills/speech dyad.
He was upset to leave school before "goodbye circle" and as his face trembled and he blinked back tears, I knelt in front of him and promised that he could go all day tomorrow. STAB. I ushered him, reluctantly, out the door, rushed him to the car, buckled him in and began the 25 minute drive. In the car, he told me he was tired and wanted to go home. I promised him one hour of play at therapy and then home for dinner and relaxing and whatever he wanted to do. STAB.
Mallory, my 3 year old daughter, fell asleep in the car and I had to wake her up and carry her into the building. And she was pantsless. STAB.
I must backup and mention that before we even left the house to pick up Noah at school, Mallory, (ahem, my 3 year old), and I had what can only be described as a brain bending argument, the kind I recall having with my own mother when I was 13, not 3. She wanted a wardrobe change and I disagreed but then she insisted and I offered a new dress and then she wanted tights instead of pants and now were late to get Noah and NOT THOSE TIGHTS, and I yelled and felt awful and finally, put her in the car, sans clothing on the bottom half, promising to dress her when we got out of the car. I kept telling her hurry up, that she wasn't allowed to make Noah late and even as I was saying this and hoping we wouldn't be late for the the pricey therapy, I was hating myself for putting that worry on her. Now as I type that, I swear to God I can never say that again, I don't want her growing up feeling any more responsible for him than she might already. STAB. MOTHERING FAIL.
When we got to therapy, he playfully hide behind me and refused to go with his therapist and "friend". I had to piggyback him into the room and then dart out.
It was in this moment, as I sunk awkwardly into the leather loveseat that I thought, "sheesh, I am wholly unqualified to be running this website, I can't even get through a day without yelling at my kid, my NT kid, upsetting my Autistic kid, and feeling like a gigantic whopping failure" .... and then I realized, Wait, I am exactly the right person to run this website because I am human, and normal, and I'm willing to stand up and announce this, publicly, (don't throw tomatoes at me, they stain).
I very firmly believe that if we all admit our vulnerablilities we wouldn't feel so insecure and inferior around each other because we would all know that we are human and we have the same feelings and problems. I think we all feel inadequate sometimes. I think we all yell at our kids sometimes. I like to admit my imperfections, because, while I can make a mean crafty poster for teacher appreciation week, I, too, have my weak moments where the stress and fatigue get the best of me and I yell, or let my kids watch a few (or, 10) episodes of Wonder Pets.
I felt guilty for having to drag Mallory around to Noah's therapy, hurrying her here and there, I felt guilty for taking Noah out of school, a class he loves, a class that has embraced him and allowed him to grow beyond my wildest dreams. Then I questioned my choice of therapy, does he really need this? Is this too much? How much therapy and shlepping should I put him through? Will my good intentions back fire?
I did apologize to Mallory in the car, telling her I was sorry for yelling. I explained that she shouldn't wear tights with a shirt, but that rationale was lost because she is, three years old. I spent time cuddling with Noah before bed, talking and playing Candy Crush together.
The kids probably won't remember any of this tomorrow but I will still question my decision to do so much therapy, worry that I did the right therapy, and wring my hands over my 3-going-on-13 year old. I promised myself I would try harder to be calmer, plan more transition time before leaving the house for my three year old to properly primp and perfect herself, constantly reevaluate how much therapy I'm taking Noah to, continue to explain and bargain and talk openly with him about his therapy and school. And, to just try again tomorrow.
::
Three years ago today, I wrote this.
He was upset to leave school before "goodbye circle" and as his face trembled and he blinked back tears, I knelt in front of him and promised that he could go all day tomorrow. STAB. I ushered him, reluctantly, out the door, rushed him to the car, buckled him in and began the 25 minute drive. In the car, he told me he was tired and wanted to go home. I promised him one hour of play at therapy and then home for dinner and relaxing and whatever he wanted to do. STAB.
Mallory, my 3 year old daughter, fell asleep in the car and I had to wake her up and carry her into the building. And she was pantsless. STAB.
I must backup and mention that before we even left the house to pick up Noah at school, Mallory, (ahem, my 3 year old), and I had what can only be described as a brain bending argument, the kind I recall having with my own mother when I was 13, not 3. She wanted a wardrobe change and I disagreed but then she insisted and I offered a new dress and then she wanted tights instead of pants and now were late to get Noah and NOT THOSE TIGHTS, and I yelled and felt awful and finally, put her in the car, sans clothing on the bottom half, promising to dress her when we got out of the car. I kept telling her hurry up, that she wasn't allowed to make Noah late and even as I was saying this and hoping we wouldn't be late for the the pricey therapy, I was hating myself for putting that worry on her. Now as I type that, I swear to God I can never say that again, I don't want her growing up feeling any more responsible for him than she might already. STAB. MOTHERING FAIL.
When we got to therapy, he playfully hide behind me and refused to go with his therapist and "friend". I had to piggyback him into the room and then dart out.
It was in this moment, as I sunk awkwardly into the leather loveseat that I thought, "sheesh, I am wholly unqualified to be running this website, I can't even get through a day without yelling at my kid, my NT kid, upsetting my Autistic kid, and feeling like a gigantic whopping failure" .... and then I realized, Wait, I am exactly the right person to run this website because I am human, and normal, and I'm willing to stand up and announce this, publicly, (don't throw tomatoes at me, they stain).
I very firmly believe that if we all admit our vulnerablilities we wouldn't feel so insecure and inferior around each other because we would all know that we are human and we have the same feelings and problems. I think we all feel inadequate sometimes. I think we all yell at our kids sometimes. I like to admit my imperfections, because, while I can make a mean crafty poster for teacher appreciation week, I, too, have my weak moments where the stress and fatigue get the best of me and I yell, or let my kids watch a few (or, 10) episodes of Wonder Pets.
I felt guilty for having to drag Mallory around to Noah's therapy, hurrying her here and there, I felt guilty for taking Noah out of school, a class he loves, a class that has embraced him and allowed him to grow beyond my wildest dreams. Then I questioned my choice of therapy, does he really need this? Is this too much? How much therapy and shlepping should I put him through? Will my good intentions back fire?
I did apologize to Mallory in the car, telling her I was sorry for yelling. I explained that she shouldn't wear tights with a shirt, but that rationale was lost because she is, three years old. I spent time cuddling with Noah before bed, talking and playing Candy Crush together.
The kids probably won't remember any of this tomorrow but I will still question my decision to do so much therapy, worry that I did the right therapy, and wring my hands over my 3-going-on-13 year old. I promised myself I would try harder to be calmer, plan more transition time before leaving the house for my three year old to properly primp and perfect herself, constantly reevaluate how much therapy I'm taking Noah to, continue to explain and bargain and talk openly with him about his therapy and school. And, to just try again tomorrow.
::
Three years ago today, I wrote this.
Labels:
autism,
Autism Journey,
family,
parenting,
personal story,
preschool,
siblings,
social skills,
therapy
Sunday, April 21, 2013
Event Summary for the Week of April 22, 2013
Check out the AutMont Calendar to see all of the activities for this week, as well as those coming up!
Tuesday, April 23:
Extraordinary Minds in MCPS
Reading Fluency and Comprehension Strategies
Peer Relationships and Bullying
Up for Discussion on AutMont:
*****
Do you know of another event? Leave details in the comments!
Tuesday, April 23:
Extraordinary Minds in MCPS
Reading Fluency and Comprehension Strategies
Peer Relationships and Bullying
Up for Discussion on AutMont:
*****
Do you know of another event? Leave details in the comments!
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